SUPPORT GROUP

CONTACT DETAILS

Angelman Syndrome Families in South Africa

Shawn or Alida: 039 737 4613

Ronel: 082 727 9558

Attention Deficit and Hyperactivity Support Group of Southern Africa (ADHASA)

http://www.adhasa.co.za

Autism South Africa

http://www.autismsouthafrica.org

Autism Western Cape

http://www.autismwesterncape.org.za

Bosom Buddies

http://www.bosombuddies.co.za

Breast Cancer Clinic
Femina Woman's Hospital, Pretoria

http://www.familialcancer.co.za

Breast Health Foundation

http://www.mybreast.org.za

CHARGE Syndrome Support Group

Mrs T. Ferreira
Email:
tferreira@mweb.co.za
Tel: 012 662 0056

Childhood Cancer Foundation South Africa (CHOC)

http://www.choc.org.za

Cleft Friends

http://www.cleftfriends.co.za

Cri-du-Chat Syndrome Support Group

Mrs Angela Bravi
Tel: 011 795 1647

Diabetes South Africa

http://www.diabetessa.co.za

Down Syndrome South Africa (DSSA) 

Fertilicare

http://www.fertilicare.org

Fragile X South Africa

Ms Gwen Hedges
Cell: 082 778 6467
Email:
gwenh@mjci.co.za

For more information on Fragile X:
http://www.fragilex.org.uk
http://www.fragilex.org

Gaucher Society South Africa

http://www.gaucherssa.co.za

Genetic Alliance South Africa

www.geneticalliance.org.za

Huntington's Association of South Africa (HASA)

http://www.huntingtons.org.za

Moebius Syndrome Foundation Africa

http://www.moebiussyndrome.co.za

Muscular Dystrophy Foundation of South Africa (MDSA)

http://www.mdsa.org.za

People Living With Cancer

http://www.plwc.org.za

Rare Diseases South Africa

http://www.rarediseases.co.za/

Retina South Africa

http://www.retinasa.org.za

Rett syndrome South Africa

http://www.rettsyndromesouthafrica.com

South African Haemophilia Foundation (SAHF)

http://www.haemophilia.org.za

Sotos Sindrome (Cerebral Gigantism)

Jolene Rheeder
Tel: 0823573813
www.facebook.com/SotosSindroomSA

STEPS South Africa

http://www.steps.org.za/

The Albinism Society of South Africa

http://www.albinism.org.za/

The Cancer Association of South Africa (CANSA)

http://www.cansa.org.za

The Prader-Willi Syndrome Association of South Africa (PWSA (SA))

http://www.praderwilli.org.za

The Smile Foundation

http://www.smilefoundationsa.org

The South African Cystic Fibrosis Association (SACFA)

http://www.sacfa.org.za

The South African Thalassaemia Association (SATA)

http://www.thal.org.za

The Sunshine Association

http://www.sunshine.org.za

The Velo-Cardio-Facial Syndrome Support Group of South Africa

Derek or Val Landau
Tel: 011 432 1482
Fax: 011 432 1482
Cell: 083 470 1998
Email:
delval@mweb.co.za

Tina Otte’s Bellies and Babies

http://www.tinaotte.com

Trisomy 18 / Edwards Syndrome Support

http://www.trisomy18.org.za

Von Hippel-Lindau (VHL) Syndome Association of South Africa

Markus Jansen van Vuuren
Cell: 082 779 5019

markus.van.vuuren@telkomsa.net

Lizette Jansen van Rensburg
Tel: 012 319 2636

lizette.vanrensburg@up.ac.za

INTERNATIONAL SUPPORT GROUPS

USA

Facing our Risk of Cancer Empowered

http://www.facingourrisk.org  

Hereditary Breast and Ovarian Cancer Society of Alberta

http://www.hbocsociety.org

Inherited Risk.com

www.inheritedrisk.com

Lynch Syndrome International

www.lynchcancers.com

UK

National Hereditary Breast Cancer Helpline

www.breastcancergenetics.co.uk

BLOGS

Young and BRCA1 positive

 http://youngbrca1pos.blogspot.com/

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